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Novel diagnostics and therapeutics for rare diseases can only be developed through the conduct of clinical research and the participation of research study volunteers. If you are seeking research studies to learn about and participate in, then there are several resources available.

For research studies being conducted in South Carolina, visit the following sites:

  • In Our DNA - A community health research project that determines how DNA affects an individual's health to help improve health care access and support medical research.
  • - The South Carolina Research Studies Directory is designed specifically to help people locate research studies in which to participate in.

If you're interested in finding study opportunities beyond the state of South Carolina as well, the following websites are excellent resources:

  • - A searchable database of clinical trials around the world.
  • RDCRN Contact Registry - A contact registry for those wanting to learn more about, or participate in, research sponsored by the Rare Disease Clinical Research Network.
  • ResearchMatch - A nationwide not-for profit online resource that matches prospective research study volunteers with researchers seeking participants.
  • Trials Today - Managed by ResearchMatch, Trials Today is a lay friendly interface that allows you to view studies posted on Clinical for which you may be eligible.