Rare Disease SC

Events

Rare Disease Day background is licensed by istockphoto.com.

Past, Current, and Upcoming Events hosted by the South Carolina Rare Disease Advisory Council will be posted here.

Past Events

RDAC Meetings

April

The RDAC April Teams meeting was held on April 12, 2024 at 10 am. NORD Policy Manager Carolyn Sheridan served as guest speaker to address the NORD SC State Report Card. The meeting minutes and NORD SC State Report Card presentation can be accessed below.

April 12 2024 minutes

NORD 2024 State Report Card

 

January

The RDAC January Teams meeting was held on January 5, 2024 at 9 am. Kendall Spillman was introduced as the council's new program coordinator and discussed plans for the inaugural Rare Disease symposium, to be held on February 29. The meeting minutes can be accessed below.

January 5 2024 minutes

 

Rare Disease Symposium

The inaugural hybrid Rare Disease Symposium was held at Segra Park, 1640 Freed Street, Columbia, SC 29201 on February 29, 2024 from 10:00 am to 2:00 pm. Registered attendees gathered both in-person and virtually to learn about innovative and impactful research going on across the state, hear personal stories from those affected by rare disease and discover some of the important advocacy work that's grown out of both necessity and hope. The symposium agenda can be accessed below. 

SC Rare Disease Symposium Agenda 2024