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Rare Disease Day background is licensed by istockphoto.com
Rare Disease Day background is licensed by istockphoto.com.

2025 Symposium in the News

A woman stands at a podium on the far left in front of a screen with a photo of a family. People in the audience are watching her.

Researchers, patient advocates, health care professionals, and community leaders gathered for the 2025 Rare Disease Symposium to highlight the latest advancements in rare disease research.

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2025 Events

2025 Rare Disease Symposium

Friday, February 28, 2025 from 10:00 a.m. to 2:00 p.m.

2025 Symposium Final Agenda (includes a Feedback Survey link)

Location: Segra Park Club Lounge
1640 Freed Street, Columbia, SC 29201 

On Rare Disease Day, the SC RDAC held its second annual Rare Disease Symposium. The symposium was free and open to the public, offering the opportunity to learn about innovative and impactful research going on across the state, hear personal stories from those affected by rare disease and discover some of the important advocacy work that's grown out of both necessity and hope. View Symposium slide deck. 

Thank you to everyone who was able to attend in person and virtually! To assist us with the planning of future events, please share your responses in a brief Feedback Survey

For any questions, please contact Halley Harris.

2024 Events