Policy & Legislation

The South Carolina Rare Disease Advisory Council (SC RDAC) is committed to supporting individuals and families affected by rare diseases by improving access to information, resources, and opportunities for engagement. This Policy & Legislation page provides an overview of state-level policy activity that may be relevant to the rare disease community, as well as tools to help South Carolinians connect with their elected representatives.

Our goal is to make it easier for stakeholders to stay informed about legislative developments that could influence rare disease research, care, services, and patient support across the state.

This page is informational only and is not intended to endorse, oppose, or advocate for any specific bill or policy.

How to Identify Your State Representatives

Understanding who represents you in the South Carolina General Assembly is an important step in staying engaged on issues that affect the rare disease community. South Carolina residents can identify their State Senator and State Representative by using the "Find Your Legislators” tool available through the South Carolina Legislature. This tool allows users to search by home address or county to quickly locate their elected officials, view district maps, and access contact information.

Relevant Resources

The following resources provide additional background on state legislative processes, rare disease policy, and civic engagement. These resources are offered for informational use only and do not represent positions or endorsements by the SC RDAC.

South Carolina Resources

• South Carolina Legislature Website – Access bills, committee information, calendars, and legislator profiles.
• Find Your Legislators Tool – Identify your State Senator and House Member using your home address.

National Resources

• National Organization for Rare Disorders (NORD) – Provides national policy updates, state report cards, community resources, and rare disease facts.
• EveryLife Foundation for Rare Diseases – Nonpartisan resources on rare disease policy, economic impact studies, and legislative tracking tools.

State Legislation Tracker

This section provides a summary of proposed legislation in South Carolina that may be of interest to the rare disease community. The tracker is informational only and does not suggest support or opposition to any bill. Bills included here have potential relevance to the rare disease community based on their subject matter, but this list should not be considered complete. Each bill’s status may change as it moves through the legislative process. The SC RDAC will update the tracker periodically to reflect newly introduced bills or changes in status as information becomes available.

South Carolina operates under a two‑year legislative session, meaning any bill that does not pass by the end of the 2025–2026 session will expire and must be refiled for consideration in the next session. As a result, legislation listed here may become inactive at the conclusion of the cycle, and future versions may differ from those introduced during the current biennium. Users seeking the most up-to-date information are encouraged to review the official South Carolina Legislature website.

The following is list formatted to include Bill Number, Bill Summary, and Bill Status.

H.3934, Copay Accumulators, In Committee (Companion Bill with S. 330)
S. 330, Copay Accumulators, In Committee (Companion Bill with H. 3934)

S.531, Step Therapy, In Committee

H.4535, Telehealth, In Committee (Companion Bill with S. 377)
S.377, Telehealth, In Committee (Companion Bill with H. 4535)

S. 717, Mother and Newborn Ombudsman, In Committee

S. 749, Prescription Medicine Study Committee, In Committee
H. 4790, Pharmacy Benefits Managers – Max Allowable Costs, In Committee
H. 4791, Drug Acquisition Cost Surveys and Reimbursements, In Committee
H. 4794, Pharmacy Benefits Managers – Trade Practices, In Committee
H. 4795, Pharmacy Benefits Managers – Drug Modifications, In Committee

Reference

H – House Bills
S – Senate Bills

Date Updated: January 29, 2026